Announcing OMF's First ME/CFS Clinical Trial!

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation® Canada

Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long COVID.

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Watch Now: NIH ME/CFS Research Roadmap Webinar Series Recordings!

The ME/CFS Research Roadmap webinars, hosted by the National Institute of Health (NIH), have successfully concluded. These virtual events brought together ME/CFS experts to present current research, identify knowledge gaps, and explore future research opportunities for ME/CFS. 

 

Open Medicine Foundation proudly participated in these webinars, with our team members not only contributing as presenters and moderators, but also driving the conversation forward in the quest for understanding ME/CFS.

Overview of webinar topics and images of David Systrom presenting and Linda Tannenbaum networking at the Open Medicine Foundation table.

Webinar on the Nervous System and ME/CFS, August 25, 2023 

  • Jonas Bergquist, MD, PhD, OMF Chief Medical Officer and Director of the OMF supported ME/CFS Collaborative Research Center at Uppsala University, presented on “Cerebral Spinal Fluid Studies.”

Webinar on Immune System and ME/CFS, October 19, 2023

  • Maureen Hanson, PhD, Cornell University & OMF Scientific Advisory Board Member, presented on “Immune cell-type approaches to identify mechanisms of ME/CFS.”

Webinar on Metabolism and ME/CFS, October 26, 2023 

  • Alain Moreau, PhD, Director of the OMF supported ME/CFS Collaborative Research Center at the University of Montreal, was the moderator. 
  • Wenzhong Xiao, PhD, Director of the OMF supported ME/CFS Collaborative Research Center at Harvard, presented on “Studying Metabolomics in ME/CFS – A Computational Perspective.”
  • Christopher W. Armstrong, PhD, Director of the OMF supported ME/CFS Collaborative Research Center at Melbourne, presented on “Metabolic characterisation of biofluids in ME/CFS.”

Webinar on Genomics/Genetic Susceptibilities, November 1, 2023 

  • David Systrom, MD, Director of the OMF supported ME/CFS Collaborative Research Center at Harvard, was the moderator. 
  • Alain Moreau, PhD, Director of the OMF supported ME/CFS Collaborative Research Center at the University of Montreal, presented on “Contribution of Epigenomics to ME/CFS Pathogenesis: Past, Present and Future.” 
  • Fereshteh Jahaniani, PhD, Stanford, presented on “Characterizing the Genetic Basis of ME/CFS through Case-Control and Family Studies.”

Webinar on Chronic Infections, November 30, 2023

  • Maureen Hanson, PhD; Cornell University & OMF Scientific Advisory Board Member, presented on “Chronic infection in ME/CFS: non-Herpes viruses.”

Webinar on Physiology, December 8, 2023

  • Robert Naviaux, MD, PhD; University of California & OMF Scientific Advisory Board Member, presented on “The Cell Danger Response.”
  • Robert Phair, PhD, presented on “Update on the Itaconate Shunt Hypothesis.”
  • Ron Davis, PhD, Director of the OMF supported ME/CFS Collaborative Research Center at Stanford University & OMF Scientific Advisory Board Director, presented on “BH4: a potential culprit.”

Webinar on Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID, December 12, 2023

  • Mark M. Davis, PhD, Stanford University & OMF Scientific Advisory Board Member, presented on “Oxidative stress is a shared characteristic of both ME-CFS and Long Covid.”
  • David Systrom, MD, Director of the OMF supported ME/CFS Collaborative Research Center at Harvard, presented on “Neurovascular dysregulation during exercise in ME/CFS.”

Webinar on Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID, December 13, 2023

  • Alain Moreau, PhD, Director of the OMF supported ME/CFS Collaborative Research Center at the University of Montreal, was the moderator. 
  • Lucinda Bateman, MD, Founder and Medical Director of Bateman Horne Center & OMF Scientific Advisory Board Member, presented on: “Using RECOVER to Understand ME/CFS and Long COVID.”
  • Maureen Hanson, PhD, Cornell University & OMF Scientific Advisory Board Member, presented on: “ME/CFS and Long COVID: Similarities and Differences.”
  • Alain Moreau, PhD, Director of the OMF supported ME/CFS Collaborative Research Center at the University of Montreal, presented on “Contribution of Epigenetics in ME/CFS and Long COVID Pathogenesis.”

Webinar on Lesser Studied Pathologies, January 5, 2024

 

Webinar on Circulation, January 11, 2024

  • David Systrom, MD, Director of the OMF supported ME/CFS Collaborative Research Center at Harvard, presented on “Neurovascular Dysregulation.”


The progress in ME/CFS research is a direct result of the support from our community. Your generosity fuels further discoveries and brings us closer to finding effective treatments. Please consider making a donation to help sustain and accelerate this important work.  

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We thank you for your continued support and for being an integral part of our mission. 

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Microvesicles and viral sequencing
Microvesicles are a type of extracellular vesicle that is released from the cell membrane. Vesicles are small, fluid-filled sacs or vacuoles within the body. Sequencing is a technique used to determine the exact sequence of bases (A, C, G, and T) in a DNA (or viral) molecule.
NMR Metabolomics
NMR (Nuclear Magnetic Resonance) is an instrument/tool used to perform metabolic studies, metabolic profiling, and metabolomics in biofluids and tissues for more than 40 years using magnetic fields. There is a very close connection between metabolic measurements and NMR. This connection has flourished because of NMR’s many unique strengths for characterizing complex mixtures’ chemical composition.
Proteomics
The large-scale study of proteins, which are large, complex molecules that are required for structure, function, and regulation of the human body's tissues and organs.
Immune cell profiling
The immune system has many important regulatory roles in disease development and progression. Given the emergence of effective immune therapies, reliable predictors of response are needed. Immune cell profiling determines response by evaluating immune cell populations from treated and untreated samples. For our purposes, we will evaluate the white blood cell response to the viral infection using a process called “Cytof.”
Leukocyte Genomics
A leukocyte is a colorless cell circulating in the blood and body fluids and is involved in counteracting foreign substances and disease. A genome is all genetic material of an organism. Genomics is a biology field focusing on the structure, function, evolution, mapping, and editing of genomes. Therefore, leukocyte genomics is the study of all genetic material of leukocytes.
Metabolomics
Metabolomics is a way to study metabolism – that is, through measuring amounts of the metabolites (small molecules) produced by our bodies as we convert food into energy and other molecules that our cells need to survive. Metabolomics technology is ‘large-scale,’ meaning that several thousand metabolites can be measured from a single sample of e.g., blood or urine.
Micro RNA
Cells use Micro RNA to control whether a particular gene is making too much, too little or the normal amount of its protein at a particular time.
Autoantibodies
Antibodies that react with self-molecules and that occur in healthy individuals and are referred to as natural antibodies or autoantibodies.
Extracellular DNA for viral reactivation and Mitochondrial DNA
exDNA (extracellular DNA), exDNA is often secreted actively and is used to perform several tasks, thereby offering an attractive target or tool for biotechnological, medical, environmental, and general microbiological applications. Viruses are intracellular parasites that rely to a significant extent on the host cell for replication. Viral reactivation occurs when an active replication of the viral genome results in a lytic (degradation of the cell) infection characterized by the release of new progeny (descendant) virus particles.