ME/CFS Research Data: the heart of the matter
ME/CFS Research Data: the heart of the matter With your support, Open Medicine Foundation funds open, collaborative research so that, as soon as possible, precise
at the Harvard Affiliated Hospitals
Clinical and scientific studies to understand and discover new treatments for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), Long COVID, and related Multisystem, Chronic Complex Diseases (msCCD).
Established in 2018, this research initiative is based at Harvard affiliated hospitals, including Massachusetts General Hospital (MGH), Brigham and Women’s Hospital (BWH), and Beth Israel Deaconess Medical Center (BIDMC).
Including the faculty of the Harvard affiliated hospitals, critical collaborations are represented from Stanford University, Cornell University, University of Birmingham, University of Nottingham, Uppsala University and Pacific Northwest National Laboratory.
This collaborative research center was launched by Ronald G. Tompkins, MD, ScD, and Wenzhong Xiao, PhD. Dr. David Systrom took on the role of Co-Director with Dr. Xiao to continue Dr. Tompkins’ Legacy after his sudden passing in early 2022. This research collaboration seeks to understand and discover new treatments for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), Long COVID, and related Multisystem, Chronic Complex Diseases (msCCD).
the role of neuroinflammation in ME/CFS
the infrastructure to begin treatment trials and form a center of excellence for ME/CFS
ME/CFS Research Data: the heart of the matter With your support, Open Medicine Foundation funds open, collaborative research so that, as soon as possible, precise
#MayMomentum research news! Transforming the diagnosis of chronic complex diseases: An update on the PASS/CAT project You might remember last year OMFCA announced that we
Dr. David Systrom, pulmonary physician at Brigham & Women’s Hospital and investigator at Massachusetts General Hospital in association with the Harvard ME / CFS Collaboration, has recently
This project aims to explore the biological changes that occur in the muscles during Post-exertional Malaise (PEM).
The study expands on a previously-awarded proposal to thoroughly explore the underlying pathophysiology of post exertional malaise (PEM), the hallmark symptom of ME/CFS.
Sleep Disturbance in ME/CFS Study AIM We intend to examine multiple sleep studies that have been conducted in the past two years and performed at
This clinical trial will test the exercise response to Mestinon in people with ME/CFS.
This project aims to understand the origin of postural orthostatic tachycardia syndrome (POTS).
This study aims to evaluate different explanations of preload failure in ME/CFS patients.
Researchers are developing a tool to help clinicians more efficiently define the character and priorities of a patient’s current symptoms of ME/CFS, Post-Treatment Lyme Disease, or Fibromyalgia.
Massachusetts General Hospital
In Memoriam – Ronald Tompkins, MD, ScD
Wenzhong Xiao, PhD
Donna Felsenstein, MD
Amel Karaa, MD
Andrew Alexander, MBA
Peng Li, PhD
Karen Buch, MD
Brigham & Womens Hospital
David Systrom, MD
Anthony Komaroff, MD
BI Deaconess Medical Center
Janet Mullington, PhD
Boston University
Lewis Kazis, ScD
Mary Slavin, PhD
Pengsheng Ni, PhD
Bill Rogers, PhD
Pacific Northwest National Laboratory
Richard Smith, PhD
John Jacob, PhD
Wei-Jun Qian, PhD
Chiari Neurosurgical Center
Paolo Bologenese, MD
Ilene Ruhoy, MD
Center For Healing Neurology
David Koffman, MD
University of Nottingham, UK
Philip Atherton, PhD
Paul Greenhaff, PhD
Daniel Wilkinson, PhD
Mathew Piasecki, PhD
University of Birmingham, UK
Janet Lord, PhD
Cornell University
Maureen Hanson, PhD
Open Medicine Foundation
Linda Tannenbaum
Chris Armstrong, PhD
Stanford University
Ronald Davis, PhD
Uppsala University, Sweden
Jonas Bergquist, MD, PhD
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