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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation® Canada
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Celebrating a Milestone: StudyME Registry Surpasses 10,000 Participants!

 

Join us in making a difference:

Sign up today and be a part of the solution!

Let’s celebrate! We are thrilled to share a monumental milestone with you: OMF StudyME Registry has now surpassed 10,000 participants!

 

In April 2023, we proudly launched OMF StudyME, a participant registry powered by StudyPages. This innovative recruitment tool was created to bridge the gap between individuals living with ME/CFS, Long COVID, and related diseases, and the researchers dedicated to understanding and finding effective treatments for these diseases.

 

Today, we have over 10,000 participants, a testament to the collective effort and commitment of our community. This achievement addresses one of the most common challenges researchers face: finding participants for their studies. OMF StudyME Registry was designed to address this challenge by providing a free global participant registry that connects researchers with individuals eager to contribute to research on ME/CFS, Long COVID, and related diseases. 

 

This incredible achievement wouldn’t have been possible without the support and dedication of our community. If you haven’t already done so, by signing up, you have the power to help researchers find answers for ME/CFS and Long COVID. The process is easy and takes less than five minutes.

Join StudyME

Key Insights About StudyME

OMF StudyME has registered over 10,000 participants across 61 countries, highlighting the global urgency for research in this field.

We have already helped recruit for ten studies at:

  • Stanford University
  • Bateman Horne Center
  • Scripps Research
  • Autoimmune Registry
  • Mt Sinai
  • Nova Southeastern University
  • Vassar College

The demographic data reveals a pronounced sex disparity with a notable 5:1 ratio of female to male participants, primarily aged 25 – 55.

Preliminary insights from the registry highlight the profound impacts of these conditions on everyday life. Participants have indicated that they are interested in research in the following areas:

  • Impairment in carrying out everyday activities (87%)
  • Post-exertional malaise (85%)
  • Cognitive impairment or brain fog (81%)
  • Unrefreshing sleep (77%)
  • Exertion intolerance (76%)

Thank you for your continued support and commitment to advancing research for ME/CFS and Long COVID, and related diseases.

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Microvesicles and viral sequencing
Microvesicles are a type of extracellular vesicle that is released from the cell membrane. Vesicles are small, fluid-filled sacs or vacuoles within the body. Sequencing is a technique used to determine the exact sequence of bases (A, C, G, and T) in a DNA (or viral) molecule.
NMR Metabolomics
NMR (Nuclear Magnetic Resonance) is an instrument/tool used to perform metabolic studies, metabolic profiling, and metabolomics in biofluids and tissues for more than 40 years using magnetic fields. There is a very close connection between metabolic measurements and NMR. This connection has flourished because of NMR’s many unique strengths for characterizing complex mixtures’ chemical composition.
Proteomics
The large-scale study of proteins, which are large, complex molecules that are required for structure, function, and regulation of the human body's tissues and organs.
Autoantibodies
Antibodies that react with self-molecules and that occur in healthy individuals and are referred to as natural antibodies or autoantibodies.
Extracellular DNA for viral reactivation and Mitochondrial DNA
exDNA (extracellular DNA), exDNA is often secreted actively and is used to perform several tasks, thereby offering an attractive target or tool for biotechnological, medical, environmental, and general microbiological applications. Viruses are intracellular parasites that rely to a significant extent on the host cell for replication. Viral reactivation occurs when an active replication of the viral genome results in a lytic (degradation of the cell) infection characterized by the release of new progeny (descendant) virus particles.
Immune cell profiling
The immune system has many important regulatory roles in disease development and progression. Given the emergence of effective immune therapies, reliable predictors of response are needed. Immune cell profiling determines response by evaluating immune cell populations from treated and untreated samples. For our purposes, we will evaluate the white blood cell response to the viral infection using a process called “Cytof.”
Leukocyte Genomics
A leukocyte is a colorless cell circulating in the blood and body fluids and is involved in counteracting foreign substances and disease. A genome is all genetic material of an organism. Genomics is a biology field focusing on the structure, function, evolution, mapping, and editing of genomes. Therefore, leukocyte genomics is the study of all genetic material of leukocytes.
Metabolomics
Metabolomics is a way to study metabolism – that is, through measuring amounts of the metabolites (small molecules) produced by our bodies as we convert food into energy and other molecules that our cells need to survive. Metabolomics technology is ‘large-scale,’ meaning that several thousand metabolites can be measured from a single sample of e.g., blood or urine.
Micro RNA
Cells use Micro RNA to control whether a particular gene is making too much, too little or the normal amount of its protein at a particular time.