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Category: News

From Darkness to Light: The Moothart Brothers’ Journey

The image is divided into two sections. Left: Thomas is standing next to a large Totoro mascot at a comic convention, wearing a yellow cap and a lanyard with an event badge. Right: Josiah is sitting on the floor, petting a large dog that is lying on a furry blanket. Josiah is wearing glasses and a green hoodie with the word "Volunteer" partially visible.

Triple Your Impact When we first shared the Moothart family’s story two years ago, they faced the unimaginable: having two children, Thomas and Josiah, severely affected by ME/CFS at the same time. The bright futures they once envisioned seemed to fade away, replaced by the daily struggle with debilitating symptoms.  At that time, Thomas had […]

Meet Rebecca: A Journey of Resilience and Advocacy for ME/CFS

Picture of Rebecca with long, light hair, wearing a white jacket over a dark top. She is indoors, and there is a floor lamp and a framed picture visible in the background, contributing to a cozy and softly lit atmosphere.

As part of Triple Giving November, we are highlighting inspiring individuals whose journeys have made an extraordinary impact. Meet Rebecca, a dedicated advocate for ME/CFS and Long COVID research and a former OMF team member. Don’t forget! Your $50 donation will triple to $150, $100 becomes $300, and $250 turns into $750. Help fund critical research […]

A Muscle Biopsy Study to Understand the Molecular Mechanisms of PEM

David Systrom, headshot

As part of our Triple Giving November campaign, we are excited to share an interview with David Systrom, MD, discussing a muscle biopsy study aimed at understanding the molecular mechanisms behind Post-Exertional Malaise (PEM). Triple My Gift A Muscle Biopsy Study to Understand the Molecular Mechanisms of PEM Watch Now The Heart of the Matter Post-exertional malaise (PEM) […]

Triple Giving November is Here: Your Gift Goes 3x Further!

OMF Canada Triple Giving November logo

Triple Giving November has officially begun!   We’re excited to kick off our biggest fundraising event of the year – Triple Giving November! From November 1 to December 3, every donation to OMF will be TRIPLED, up to $500,000, thanks to our generous matching donors. This represents a crucial opportunity to accelerate ME/CFS and Long […]

Recognizing POTS Awareness Day: Join Us in Spreading Awareness!

A headshot of Kate, who has long, straight blonde hair and is wearing a dark blazer over a white blouse. The background is a neutral light gray, and the image is framed in a circular format.

Recognizing POTS Awareness Day: Join Us in Spreading Awareness!​ October is Dysautonomia Awareness Month, and today, October 25th, we recognize POTS Awareness Day! At OMF Canada, we stand united with millions worldwide to amplify awareness of these often-overlooked conditions. Living with POTS can make doing even the simplest of tasks feel incredibly difficult. I never […]

New Study from the ME/CFS Collaborative Center at Uppsala: Altered Metabolic Pathways in ME/CFS

The image depicts a grand building at Uppsala University, showcasing classic architectural design. The edifice features a symmetrical façade with arched windows on the ground floor and rectangular windows on the upper floors, all framed with decorative moldings.

The Heart of the Matter The ME/CFS Collaborative Center at Uppsala published an article on altered metabolic pathways in ME/CFS. The tryptophan metabolic pathway is highly relevant to ME/CFS because of its roles in immune function, neurotransmission, and energy metabolism. Untargeted and targeted analysis of metabolites revealed significant changes in metabolic networks of ME/CFS patients […]

Life Improvement Trial (LIFT) has officially begun!

This image features Jonas Bergquist and David Systrom’s portraits within circular frames, each bordered by a blue outline.

The Life Improvement Trial (LIFT) has officially begun! Conducting a proper clinical trial and ensuring all logistics are set up takes time, so we are excited to share that Open Medicine Foundation’s Life Improvement Trial (LIFT) has officially launched. Recruitment and screening began in August and the first participants have now been enrolled. What is […]

Watch Now: Recordings from the Portugal ME/CFS and Long COVID Conference!

Picture of Linda Tannenbaum, Jonas Bergquist, David Systrom, and Wenzhong Xiao standing next to a banner for the 1st International Conference on ME/CFS and Long COVID in Portugal.

We are pleased to share that recordings from the 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID are now available! This event, the first in Portugal, brought together leading scientists, clinicians, and international experts to share and discuss the latest biomedical evidence and findings on ME/CFS and the nexus between […]

Celebrating a Milestone: StudyME Registry Surpasses 10,000 Participants!

The image features the StudyME logo at the top left, which includes a stylized globe of interconnected circles in blue and teal, accompanied by the text "StudyME." Below the logo, a group of eight diverse, smiling individuals stands together, suggesting community and collaboration. At the bottom, the text reads: "Help us reach 100,000 participants!"

  Join us in making a difference: Sign up today and be a part of the solution! Let’s celebrate! We are thrilled to share a monumental milestone with you: OMF StudyME Registry has now surpassed 10,000 participants!   In April 2023, we proudly launched OMF StudyME, a participant registry powered by StudyPages. This innovative recruitment […]

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Microvesicles and viral sequencing
Microvesicles are a type of extracellular vesicle that is released from the cell membrane. Vesicles are small, fluid-filled sacs or vacuoles within the body. Sequencing is a technique used to determine the exact sequence of bases (A, C, G, and T) in a DNA (or viral) molecule.
NMR Metabolomics
NMR (Nuclear Magnetic Resonance) is an instrument/tool used to perform metabolic studies, metabolic profiling, and metabolomics in biofluids and tissues for more than 40 years using magnetic fields. There is a very close connection between metabolic measurements and NMR. This connection has flourished because of NMR’s many unique strengths for characterizing complex mixtures’ chemical composition.
Proteomics
The large-scale study of proteins, which are large, complex molecules that are required for structure, function, and regulation of the human body's tissues and organs.
Autoantibodies
Antibodies that react with self-molecules and that occur in healthy individuals and are referred to as natural antibodies or autoantibodies.
Extracellular DNA for viral reactivation and Mitochondrial DNA
exDNA (extracellular DNA), exDNA is often secreted actively and is used to perform several tasks, thereby offering an attractive target or tool for biotechnological, medical, environmental, and general microbiological applications. Viruses are intracellular parasites that rely to a significant extent on the host cell for replication. Viral reactivation occurs when an active replication of the viral genome results in a lytic (degradation of the cell) infection characterized by the release of new progeny (descendant) virus particles.
Immune cell profiling
The immune system has many important regulatory roles in disease development and progression. Given the emergence of effective immune therapies, reliable predictors of response are needed. Immune cell profiling determines response by evaluating immune cell populations from treated and untreated samples. For our purposes, we will evaluate the white blood cell response to the viral infection using a process called “Cytof.”
Leukocyte Genomics
A leukocyte is a colorless cell circulating in the blood and body fluids and is involved in counteracting foreign substances and disease. A genome is all genetic material of an organism. Genomics is a biology field focusing on the structure, function, evolution, mapping, and editing of genomes. Therefore, leukocyte genomics is the study of all genetic material of leukocytes.
Metabolomics
Metabolomics is a way to study metabolism – that is, through measuring amounts of the metabolites (small molecules) produced by our bodies as we convert food into energy and other molecules that our cells need to survive. Metabolomics technology is ‘large-scale,’ meaning that several thousand metabolites can be measured from a single sample of e.g., blood or urine.
Micro RNA
Cells use Micro RNA to control whether a particular gene is making too much, too little or the normal amount of its protein at a particular time.