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Category: Newsletter

Newsletter June 2021

Thank you for your support during #MayMomentum! Thanks to our community’s generosity and shared dedication, our annual May Momentum campaign was a huge success. Through individual donations and personal fundraisers on Facebook, Instagram, Twitch and other platforms, we raised over $175,000 for critical research into ME/CFS and related chronic, complex diseases! We are so grateful […]

Newsletter March 2021

OMF joins the Long COVID Alliance to accelerate research for post-infectious illness Open Medicine Foundation (OMF) is pleased to announce that we have joined 49 new partners in the fight to return millions of Americans to health. The Long COVID Alliance is a network of patient advocates, scientists, disease and public health experts, along with […]

Newsletter February 2021

An Update from Chris Armstrong, Director, Melbourne ME/CFS Collaboration The Melbourne ME/CFS Collaboration is the fifth and newest OMF funded collaborative research center. After making the journey to Australia to set up the Collaborative Research Center (CRC), Director Chris Armstrong began the groundbreaking study that he hopes will improve the lives of ME/CFS patients of […]

Newsletter October 2020

Join our Mission to End ME/CFS: Your Digital Fundraising Toolkit is Here! Passionate about our mission to end ME/CFS? Join us in our fight to fast-track critical research into Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) by starting your own digital fundraiser! Open Medicine Foundation (OMF) is excited to announce that we have […]

Newsletter – August 2020

OMF’s ME/CFS and COVID-19 Research ProjectBrought into National Focus Open Medicine Foundations’ ME/CFS and COVID-19 research project was brought into national focus at a recent, federally-sponsored meeting of the first-ever virtual Interagency ME/CFS Working Group Meeting. This first meeting of the new Working Group focused on ME/CFS and those suffering from post-COVID-19 symptoms (aka “long-haulers”).  […]

You Inspire Us!

Riding to Raise Awareness: A Sister’s Fight to End ME / CFS Biking from coast to coast of any country is a significant journey. Although the stunning backdrop of Sweden’s coastline may be enough to inspire the ride, the motive for Swedish OMF supporter Olivia goes much deeper; Olivia’s sister Clara has Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME / CFS) […]

March 2020 Newsletter

OMF 2019 YEAR IN REVIEW We realize that you take your philanthropy seriously, and we are honored by your belief in our mission and our efforts to end Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS). The accomplishments contained in the following, OMF 2019 Year in Review, are only possible because of you; your […]

November Newsletter

HARVARD-AFFILIATED HOSPITALS EXAMINE ME / CFS PATIENT CARE Ronald G. Tompkins, MD, ScD, co-director of the OMFCA-funded Harvard ME / CFS Collaboration, and collaborative team member, Amel Karaa, MD, are diving into the current state of care for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) patients. Tompkins and Karaa, together with OMFCA Founder […]

October 2019 Newsletter

Ron Tompkins and Jonas Bergquist Attend RME Sweden Conferences OMF Scientific Advisory Board members Ronald G. Tompkins, MD, ScD, and Jonas Bergquist, MD, PhD, are participating at the annual RME sponsored Roundtable meetings at the Lejondal Castle outside Stockholm on October 15-16. These meetings bring together leading researchers and clinicians from across Europe focused on […]

Consent management

Consent Preferences

Data Subject Access Request (DSAR) Form 

Microvesicles and viral sequencing
Microvesicles are a type of extracellular vesicle that is released from the cell membrane. Vesicles are small, fluid-filled sacs or vacuoles within the body. Sequencing is a technique used to determine the exact sequence of bases (A, C, G, and T) in a DNA (or viral) molecule.
NMR Metabolomics
NMR (Nuclear Magnetic Resonance) is an instrument/tool used to perform metabolic studies, metabolic profiling, and metabolomics in biofluids and tissues for more than 40 years using magnetic fields. There is a very close connection between metabolic measurements and NMR. This connection has flourished because of NMR’s many unique strengths for characterizing complex mixtures’ chemical composition.
Proteomics
The large-scale study of proteins, which are large, complex molecules that are required for structure, function, and regulation of the human body's tissues and organs.
Autoantibodies
Antibodies that react with self-molecules and that occur in healthy individuals and are referred to as natural antibodies or autoantibodies.
Extracellular DNA for viral reactivation and Mitochondrial DNA
exDNA (extracellular DNA), exDNA is often secreted actively and is used to perform several tasks, thereby offering an attractive target or tool for biotechnological, medical, environmental, and general microbiological applications. Viruses are intracellular parasites that rely to a significant extent on the host cell for replication. Viral reactivation occurs when an active replication of the viral genome results in a lytic (degradation of the cell) infection characterized by the release of new progeny (descendant) virus particles.
Immune cell profiling
The immune system has many important regulatory roles in disease development and progression. Given the emergence of effective immune therapies, reliable predictors of response are needed. Immune cell profiling determines response by evaluating immune cell populations from treated and untreated samples. For our purposes, we will evaluate the white blood cell response to the viral infection using a process called “Cytof.”
Leukocyte Genomics
A leukocyte is a colorless cell circulating in the blood and body fluids and is involved in counteracting foreign substances and disease. A genome is all genetic material of an organism. Genomics is a biology field focusing on the structure, function, evolution, mapping, and editing of genomes. Therefore, leukocyte genomics is the study of all genetic material of leukocytes.
Metabolomics
Metabolomics is a way to study metabolism – that is, through measuring amounts of the metabolites (small molecules) produced by our bodies as we convert food into energy and other molecules that our cells need to survive. Metabolomics technology is ‘large-scale,’ meaning that several thousand metabolites can be measured from a single sample of e.g., blood or urine.
Micro RNA
Cells use Micro RNA to control whether a particular gene is making too much, too little or the normal amount of its protein at a particular time.