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Types of Outcome Measures From the Desk of Dr. Danielle Meadows, Vice President of Research Programs & Operations In an effort to talk a little more about the nuances of the research process, last month I honed in on an aspect of “Study Design, IRB/Ethics Review”: well-powered studies. This month, I want to shift slightly […]
Understanding Post Exertional Malaise (PEM) in ME/CFS | OMF
Post-exertional malaise (PEM) is a defining symptom of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), marked by a significant worsening of symptoms or the development of flu-like symptoms following physical or mental exertion. PEM can be triggered by even minimal activity and lead to severe and prolonged debilitation. Key Characteristics of Post-Exertional Malaise PEM manifests as a […]
Message from Anna: Finding Hope in Community!
Dear OMFCA Community, My name is Anna Carina, and I live with my family in Vaxholm, Sweden. In 2016, our son Lucas fell ill with ME/CFS after having a glandular fever at the age of 13. We went through the same story of disbelief, stigmatization, and blame that many of you have also experienced. […]
Charlotte’s Voice: A Personal Journey with ME/CFS!

Today, we are privileged to bring you the narrative of extraordinary courage, resilience, and strength. At just 14 years old, Charlotte’s life took an unexpected turn with a diagnosis of ME/CFS. Read Charlotte’s story in her own words: “My name is Charlotte; I am 18 years old, and I have been living with […]
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Open Medicine Foundation (OMF) is proud to share details of a new OMF-funded publication from Christopher Armstrong, Ph.D., and colleagues: “In vitro B cell experiments explore the role of CD24, CD38 and energy metabolism in ME/CFS.” Read now! From the Desk of Dr. Armstrong, Director of the OMF SupportedMelbourne ME/CFS Collaboration: In this paper, we […]
Empower Change: Support May Momentum!

Join OMFCA’s May Momentum ’23 campaign to support ME/CFS & Long COVID research. Donate, fundraise, & spread awareness for a healthier future.
Advancing Long COVID & ME/CFS Research: OMF Collaborative Centers Receive Funding from Patent Led Research Collaborative (PLCRC)

OMF & PLRC pioneer progress for ME/CFS & Long COVID. New funded studies provide insights into sleep disorders, and new treatments.
OMF & Patient-Led Research Collaborative: Pioneering Progress for ME/CFS and Long COVID

In late 2022, OMF was honored to be awarded with three research grants from Patient Led Research Collaborative (PLRC). These research projects will investigate three key areas: sleep, drug repurposing, and multi-omics of ME/CFS and Long COVID.
New Publication from Alain Moreau, PhD, & Colleagues!
New OMF supported research from Alain Moreau & team shows potential to differentiate ME/CFS from Fibromyalgia & comorbid conditions using miRNA signatures.
Seasons Greetings from OMF & Holiday Tips From our Community!

At OMFCA, we know this time of the year can be challenging for those impacted by multi-system chronic, complex diseases (msCCD). We asked our community on social media to share some of your top tips for coping with chronic illnesses .