Announcing OMF's First ME/CFS Clinical Trial!

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation® Canada

Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long COVID.

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OMF’s StudyME Registry – Be Counted!

Join the Research Momentum with
OMF’s StudyME

 

A Patient-Powered Participant Registry

To help find a CURE faster.

Do you want to help speed up the research process? Now you can!

We have just launched OMF’s StudyME, a participant registry powered by the incredible StudyPages platform, to connect those who want to participate in research studies to the researchers who conduct them.

Stand up and be counted! Help us enroll 100,000 participants, comprising of individuals afflicted with ME/CFS, Long COVID, Fibromyalgia and related post-infection illnesses, as well as healthy volunteers. OMF’s StudyME makes recruiting faster, promotes global collaboration and will help make it easier for researchers to get grants with a large and diverse pool of participants. 

SIGN UP NOW! 

Linda Tannenbaum, OMF’s Founder & CEO/President shares why signing up to OMF’s StudyME is a win-win: 

 

 

And today, May 1, 2023, marks the first day of May Momentum, an annual fundraising initiative by OMF to raise awareness and drive research forward. There’s no better time to support May Momentum by signing up for StudyME today. 

Joining OMF’s StudyME is super quick and easy. It only takes a few minutes. All you have to do is fill in your contact information and what kind of studies you’re interested in. That’s it!

When you join OMF’s StudyME, you will be sent email notifications containing participant opportunities as they come up, such as surveys for collecting crucial data, requests for study samples, and even the possibly to participate in treatment trials when available in your area.

Rest assured; your email address will not be shared. By clicking on the opportunities to the studies that you are interested in, you can learn more about them and directly contact the research team involved in that particular study. We merely post opportunities to accelerate the recruitment process.

So, if you want to help shave years off the time it takes to find a cure, sign up for OMF’s StudyME today, and join this movement together!

Contact StudyME@omf.ngo with questions.

 

 

On the first day of #MayMomentum, we invite you to make a difference by donating. Your gift will build momentum by supporting vital research efforts and medical education to improve the lives of millions of people who suffer from ME/CFS, Long COVID, and related diseases. Every donation counts. We appreciate your support in our mission to advance research and find a cure faster!

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Data Subject Access Request (DSAR) Form 

Microvesicles and viral sequencing
Microvesicles are a type of extracellular vesicle that is released from the cell membrane. Vesicles are small, fluid-filled sacs or vacuoles within the body. Sequencing is a technique used to determine the exact sequence of bases (A, C, G, and T) in a DNA (or viral) molecule.
NMR Metabolomics
NMR (Nuclear Magnetic Resonance) is an instrument/tool used to perform metabolic studies, metabolic profiling, and metabolomics in biofluids and tissues for more than 40 years using magnetic fields. There is a very close connection between metabolic measurements and NMR. This connection has flourished because of NMR’s many unique strengths for characterizing complex mixtures’ chemical composition.
Proteomics
The large-scale study of proteins, which are large, complex molecules that are required for structure, function, and regulation of the human body's tissues and organs.
Immune cell profiling
The immune system has many important regulatory roles in disease development and progression. Given the emergence of effective immune therapies, reliable predictors of response are needed. Immune cell profiling determines response by evaluating immune cell populations from treated and untreated samples. For our purposes, we will evaluate the white blood cell response to the viral infection using a process called “Cytof.”
Leukocyte Genomics
A leukocyte is a colorless cell circulating in the blood and body fluids and is involved in counteracting foreign substances and disease. A genome is all genetic material of an organism. Genomics is a biology field focusing on the structure, function, evolution, mapping, and editing of genomes. Therefore, leukocyte genomics is the study of all genetic material of leukocytes.
Metabolomics
Metabolomics is a way to study metabolism – that is, through measuring amounts of the metabolites (small molecules) produced by our bodies as we convert food into energy and other molecules that our cells need to survive. Metabolomics technology is ‘large-scale,’ meaning that several thousand metabolites can be measured from a single sample of e.g., blood or urine.
Micro RNA
Cells use Micro RNA to control whether a particular gene is making too much, too little or the normal amount of its protein at a particular time.
Autoantibodies
Antibodies that react with self-molecules and that occur in healthy individuals and are referred to as natural antibodies or autoantibodies.
Extracellular DNA for viral reactivation and Mitochondrial DNA
exDNA (extracellular DNA), exDNA is often secreted actively and is used to perform several tasks, thereby offering an attractive target or tool for biotechnological, medical, environmental, and general microbiological applications. Viruses are intracellular parasites that rely to a significant extent on the host cell for replication. Viral reactivation occurs when an active replication of the viral genome results in a lytic (degradation of the cell) infection characterized by the release of new progeny (descendant) virus particles.