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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation® Canada
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A participant registry

Accelerate research: Be a participant

OMF’s StudyME, powered by StudyPages, is a recruitment tool to connect individuals interested in participating in research studies with the researchers conducting them.

Sign up now!

STAND UP AND BE COUNTED

Let's show the world how many people want a cure

What is the purpose?

Our goal is to enhance the quality of life for individuals affected by ME/CFS, Long Covid, Fibromyalgia, and other post-infection illnesses by expediting research in these areas and increasing awareness by showing how many people are waiting for a cure.

How do I sign up?

Signing up is easy and takes less than five minutes. All you need to do is provide your contact details and specify your areas of interest. Once you’ve done this, we’ll send you email notifications whenever there are research opportunities that align with your interests to potentially participate in surveys, laboratory studies, or treatment trials.

8 Compelling Reasons to Sign Up Today!

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Faster Research

StudyME can make it easier for ME/CFS researchers to recruit participants for their studies, which means findings get published faster.
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Higher Quality Research

StudyME makes it easier for ME/CFS researchers to find the ideal participants for a research study, which leads to higher quality findings that may be easier to replicate.
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Increased Awareness

StudyME can use annual surveys to highlight the emotional, financial, social, and physical challenges of living with ME/CFS.
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Expanded Funding

StudyME can help ME/CFS researchers secure more funding by showing that there is a community of patients “ready and willing” to participate in research studies.
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More Collaboration

StudyME can give ME/CFS researchers across the globe an incentive to collaborate on research studies, leading to better insights.
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Reduced Failure Rate

StudyME can improve sample sizes for ME/CFS research studies, which reduces the likelihood that studies are dismissed by the scientific community due to low-sample sizes.
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Increased Credibility

StudyME can become the industry standard for recruiting high-quality participants, which could give government entities and pharma companies the confidence they need to invest more in ME/CFS research.
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Stronger Community

StudyME can bridge the gap between ME/CFS researchers and ME/CFS patients so there is stronger collaboration, allowing both parties to learn from each other and evolve their understanding of the illness.

StudyME has helped recruit participants for research at universities and institutions, including:
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Everyone is welcome.

Encourage others to join!

Researchers are interested in individuals suffering from specific illnesses as well as healthy individuals who can act as “controls” or reference points. Thus, even if you are in good health, we encourage you to sign up for OMF’s StudyME to support patient communities and promote scientific research.

Please note that each study will have specific eligibility criteria set by the researchers themselves. Our role is simply to connect interested participants with research teams to accelerate progress in these areas.

No personal medical information is required! All that is needed is your contact information and areas of research interest, and you’re all set. Contact StudyME@omf.ngo with questions.

Share StudyME using our Social Toolkit

#MECFS    #LongCovid    #PatientResearch    #StudyME    #StudyPages    #OpenMedicineFoundation #ClinicalResearch

Disclaimer

Please note that by registering for StudyME, you are opting in to receive email communications from Open Medicine Foundation (OMF) regarding research studies that match your interests. These studies may be conducted by third parties (like universities or doctors) that are not affiliated with nor funded by OMF as well as OMF funded studies. 

The safety and scientific validity of each study is the sole responsibility of the study sponsor and investigators. The listing of a study does not imply that it has been evaluated, verified, or endorsed by OMF. 

The information on OMF’s StudyME is provided by study sponsors and investigators, and they are responsible for ensuring that their study follows all applicable laws and regulations in the study location. StudyME participants are responsible for doing their own due diligence to make sure that a research study that they wish to be a part of follows the local laws in the location where they reside, including, but not limited to, the protection of medical records, data privacy, expert supervision, etc. 

It is important to consider all options before deciding to participate in a study and it is recommended that individuals speak with their healthcare provider to determine if it is appropriate for them. StudyME is simply listing opportunities for research studies. Applying for a research study does not guarantee acceptance to participate; acceptance is solely up to the investigator of that particular study. 

Disclaimer

Consent management

Consent Preferences

Data Subject Access Request (DSAR) Form 

Microvesicles and viral sequencing
Microvesicles are a type of extracellular vesicle that is released from the cell membrane. Vesicles are small, fluid-filled sacs or vacuoles within the body. Sequencing is a technique used to determine the exact sequence of bases (A, C, G, and T) in a DNA (or viral) molecule.
NMR Metabolomics
NMR (Nuclear Magnetic Resonance) is an instrument/tool used to perform metabolic studies, metabolic profiling, and metabolomics in biofluids and tissues for more than 40 years using magnetic fields. There is a very close connection between metabolic measurements and NMR. This connection has flourished because of NMR’s many unique strengths for characterizing complex mixtures’ chemical composition.
Proteomics
The large-scale study of proteins, which are large, complex molecules that are required for structure, function, and regulation of the human body's tissues and organs.
Autoantibodies
Antibodies that react with self-molecules and that occur in healthy individuals and are referred to as natural antibodies or autoantibodies.
Extracellular DNA for viral reactivation and Mitochondrial DNA
exDNA (extracellular DNA), exDNA is often secreted actively and is used to perform several tasks, thereby offering an attractive target or tool for biotechnological, medical, environmental, and general microbiological applications. Viruses are intracellular parasites that rely to a significant extent on the host cell for replication. Viral reactivation occurs when an active replication of the viral genome results in a lytic (degradation of the cell) infection characterized by the release of new progeny (descendant) virus particles.
Immune cell profiling
The immune system has many important regulatory roles in disease development and progression. Given the emergence of effective immune therapies, reliable predictors of response are needed. Immune cell profiling determines response by evaluating immune cell populations from treated and untreated samples. For our purposes, we will evaluate the white blood cell response to the viral infection using a process called “Cytof.”
Leukocyte Genomics
A leukocyte is a colorless cell circulating in the blood and body fluids and is involved in counteracting foreign substances and disease. A genome is all genetic material of an organism. Genomics is a biology field focusing on the structure, function, evolution, mapping, and editing of genomes. Therefore, leukocyte genomics is the study of all genetic material of leukocytes.
Metabolomics
Metabolomics is a way to study metabolism – that is, through measuring amounts of the metabolites (small molecules) produced by our bodies as we convert food into energy and other molecules that our cells need to survive. Metabolomics technology is ‘large-scale,’ meaning that several thousand metabolites can be measured from a single sample of e.g., blood or urine.
Micro RNA
Cells use Micro RNA to control whether a particular gene is making too much, too little or the normal amount of its protein at a particular time.